CS drug treatment on the horizon
There is a ray of hope for a possible treatment for our CS children. I had a meeting with researchers from NIH yesterday regarding a drug trial being designed to help CS kids. Over the next several months they will release more information to us to share with our families whom I know will be very interested in participating!
This is one of several very exciting projects going on right now that I am pleased to be able to announce (and more in the very near future!). The SCCS Network of CS patient families, friends, medical professionals and scientists all over the world continues to expand and is instrumental to accelerating research for individuals living with Cockayne syndrome.
Thank you all for your support! CS families, please be sure that we have your current contact information in our database by clicking this link and registering http://cockaynesyndrome.org/get-involved/register/
Love to All, especially all of our CS Families around the world !!
Jackie Arias Clark
Share & Care Cockayne Syndrome Network