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Kael

Kael

Kael
CS type 1

Kael is 9 years old born July 18, 2005. He is a lover of all things trucks and trailers, anything that can be towed. He is his daddy’s boy, he has a great personality and sense …

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Jack

Jack

Jack lives in California with his mom, dad, and big sister. He is an incredibly happy, social boy with an infectious smile. Jack enjoys bath time and being cuddled. He loves music and being around other children. Jack is the …

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Marcus

Marcus

Marcus Benoit
CS Type 1
Born March 27, 1994
Stephenville, NL Canada
Age: 20
Weight: 44 lbs

March was born at 30 weeks gestation. He was initially diagnosed with cerebral palsy, but by age 3 the rehabilitation physician suspected CS …

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Jamison

Jamison

Jamison is 4years old with type 1 cs. She is the sweetest, most loving little girl, always quick to offer up a hug or kiss. She is smart and sassy, the quintessential girly girl. In a word, Jamison is joy.…

 
Juliann

Juliann

Juliann

Juliann picture 2

My nickname is tuttie. I was born 6 weeks early and never moved in my mommy’s belly.
From the start my parents knew that I was special. At birth I couldn’t maintain my body
temperature and finally at 5 …

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Derick

Derick

Derick

Type I CSA
Born 12/04/03
Height 37”
Weight 25 lbs.

Derick was diagnosed when he was 5 ½ years old. When he was born he had already had a hard time just surviving Gestational Diabetes and fighting with his …

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Chloe

Chloe

Chloe

4 years old
CS type 2

CHLOE IS 4 YEARS OLD HER BIRTHDAY IS JUNE 9 2005 SHE WAS DIANOSED WITH CS 1 JUST 2 MONTHS AGO ITS BEEN A HARD ROAD BUT FINALLY WE ARE GETTING SOME ANSWERS …

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Jake

Jake

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Age 9

Jake is a very easy going beautiful little boy. He loves playing with his cars and throwing balls around and walking anywhere. Jake was born with cataracts and has been wearing contacts since three months. He is very …

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Samantha

Samantha

Samantha

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When she was born she looked like a doll in the nursery. Four days later she was diagnosed with cataracts. She just got diagnosed with CS Type 2 in August ’07, just after her 5th birthday and countless doctors …

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Natasha

Natasha

Natasha Victoria Belston

Age: 8 years old
CS: 2
Height: 32 inches
Weight: 20 pounds

My name is Natasha Victoria Belston but my family calls me Tasha because I’m tiny!! I was diagnosed with Cockayne Syndrome Type 2 when I …

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