We are asking families read over this and participate in this short survey for one of our wonderful scientists.
Cockayne Syndrome Share and Care Network Patient Survey
We are asking you to take part in a research study conducted by …
Way to go Eberstein Family!!!…
Eris’ dad is hiking 166 miles of The Appalachian Trail.
He is hoping to raise the much needed funds to help support research.
http://www.firstgiving.com/cockaynesyndrome/journey-for-eris
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Jamison Rose is the most loving, friendliest, and full of life 4 year old you will ever meet. People always remark about what a delightful, social and outgoing child she is, truly a very special girl. In a word, Jami …
July 23-26, 2015 in Atlanta, GA.
Click link to register http://events.constantcontact.
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An Optimistic Update Regarding the CS Study
I want to thank the Share and Care Network, and especially the parents who gave their consent and the children who donated blood for our CS study. With apologies for the silence, we …
