Darren Paul Johnson
9-3-86 ~ 12-16-02
A friend is a person who lifts you up when you are down,
Who makes life fun when they’re around
Whose memories dance in around your brain
And never fades from time constraints
There are special times when you need to smile,
Or times when you need reminders
Of what is important in life
And you turn to look at a friend and just their presence
Tells you what’s important in life
Yes a friend is important, but consider a son is closer than a friend
A son is who you try to build a future with together
The sad thing is, sometimes your plans in mid-stream
Because an enemy of mankind, death gets in the way
And throws your life in turmoil and disarray
Yet it’s memories of our son that I know will help me cope
With the pain and suffering that hurts so much
I reflect on his life, and see what a happy child he was
And the man he could have become
Oh the memories…
I can still see him laughing and playing inside my head
And telling me vivid stories of things I remember
For hours we share those memories where no one else intrudes
Where we can be together in blissful solitude
And reflect together on the time in the future
Yet in the future, there is one thing I can hold onto,
And that is when Jehovah our God will make his promise come true,
A promise that a paradise earth of beauty is coming
Where there is no more Cockayne Syndrome and death will release its hold
On ones we all hold so dear… yes, our little Darren Paul will live again
A promise that includes the blind seeing and the deaf will hearing
And pain will be a thing of the past, for all of our little butterflies
Where a paradise earth will be provided for children will grow to their full potential
Where once again we all will be able to laugh and play for real
So we try not to be sad, because this is a sure hope for our family.
This is what Darren looked forward to, what our family hopes for.
For we know that this is an opportunity all CS families can have. SOON